In November 2014 my best buddy and cousin, Danny Johnson was diagnosed with ALS. He was 53. His ALS progressed very rapidly and he passed away in March 2015. Danny was loved by all who knew him. He was the light of our family, the one who always got the party going, organized family camping trips, was there lend a helping hand if you needed him and the best "uncle" to numerous young people, whether related or not. Not a day goes by that I don't miss him and I know that others feel the same way.
When he was diagnosed, we all became aware of the terrible reality that there is no real treatment for ALS, just make the best of every moment and adapt to ever increasing limitations. This needs to change!!
Thank you for helping me reach my Walk to Defeat ALS® fundraising goal! The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
That’s why I’m walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
But, we can’t stop now. The key to a cure begins with you.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.
