Team Jim L'Ecuyer
Dear Team... a Message from Brian L'Ecuyer...
It is difficult to believe that 6 years have passed since Jim made the decision to end his life support -- a decision that I still can not fathom but one that showed how strong he was right to the very end. He introduced me to all of you and brought you into our family -- from lasagna dinners in Massachusetts, seeing you in "Cabaret" at Roger Williams, telling us the story of "Spare Us" at the Melodrama, connecting us (6 degrees) as I watched you get fitted with a flying rig when you played a talking parrot, etc. etc. The stories and memories we all share of that incredible person are not forgotten and may they live on in each of us.
Personally, I want to thank you for your time and energy raising all this money in his memory for the ALS Association. The ALSA was incredible to Jim as his body failed him, from loaned equipment which fascinated him to their personal visits to him in the various hospitals/care facilities. I recall being with him (and Pappas) the day the national President visited him in NYC and after they left he began to tear up. We asked him what was going on and he mouthed the words, "I just never thought I was worthy of any of this." I wonder what he would think of the last six years of raising funds in his honor!
I hope you don't mind that I took it upon myself to order shirts. I loved the photo that was morphed and it received such a positive response when I posted it on Facebook that I thought it needed to be shared. Sherie will be receiving the T-shirts that show a multi-colored photo of him holding Mabel and the words "Team Jim L'Ecuyer". The date of the walk was removed so the shirt can be worn multiple years but, more importantly, it can be worn at any time. We were a team when the illness first hit him (Tia/Evan cutting his hair in NY Presby; Sherie confronting the doctor at Columbia; going to his room in Wash Hts at 2 AM because he was afraid of the night staff; Harker buidling a cushion for the sofa; etc. etc. etc. etc.) and hopefully, we will be a team indefinitely. I chose the color red for a few reasons -- I wanted the shirt to stand out; it looked good with the artwork; and it looks good on most people. One day I was pushing Jim in his wheelchair and we passed a mirror. He made me back up so he could look at himself, adjust his hair, then mumbled, "hmmm, I didn't think I was so vain." A good lesson he taught me that day so, yeah, the T-shirt should look good -- we're all vain on some level at some point. :)
So thank you -- THANK YOU -- for your time and fundraising efforts. And special thanks to Sherie for organizing and the relentless efforts to keep his memory alive. My family, though I don't speak for them, does what it can to support the team as we miss him enormously and our family is well-aware of the Team effort. This disease, through Jim, has affected our lives and, as others we know fall ill to it and their families are affected, the Walk is a good way to support them as well. I think this would please Jim most -- we are raising awareness, money and walking in his memory that will be for the betterment of others -- this would totally play into his self-realized vanity. :)
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease yet it still costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.
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