The Wright Way
Beth and Jeff Wright
Beth and Jeff Wright's Story
Another busy year! I am Beth Wright, I was diagnosed with ALS 4 yrs ago and I am now 55 years old. Jeff and I have participated in the Walk Over the Hudson for the past two years and had a wonderful time with unbelievable support from all of our family and friends! The team picture above (The Wright Way Team page) was taken at the 2016 walk and shows our team. This year saw the biggest breakthrough yet happened in the fight against ALS - Radicava – an FDA approved treatment that man slow the progression of the disease in patients by 30%!!! Approved in February, it became available to patients in August. This is the first drug approved to treat ALS in over 20 years however, the prior drug provided such negligible help that, in my opinion Radicava is the FIRST real ALS treatment ever! At the time of this writing (mid August) I am hopeful that I will be able to begin this treatment within the next few weeks!
Join our team, come to the walk this October and find out how I made out!
A quick update on my own health: I have lost the complete use of my legs, my arms and have very limited use of my hands. I depend on assistance for every physical need. But the good news is that I have very strong lungs, have normal speech, am emotionally strong and have the ability to do many things including advocate for ALS! And now with the potential of 30 percent more time, the possibility of me surviving long enough to see a cure becomes real.
So join our team and walk with us on October 15 across the beautiful Walkway over the Hudson to raise awareness and the money that is needed to find a cure. If you are unable to walk with us, please consider making a donation to our team. Funding is desperately needed and you can be sure it WILL now make a big difference!
'Defeat ALS the Wright Way'!
Beth and Jeff Wright
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease yet it still costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.
|Denotes a Team Captain|