As you may or may not know, our Mom (Diane Hackett) has recently been diagnosed with familial ALS. Unfortunately, this disease has spanned our family for multiple generations: Our grandmother (Donata Altiere) died of this deadly disease in 1959 at the age of 44. My mother's cousin Gerard Laurenzano died of ALS in 1998 at the age of 50, and our great grandmother may have died of ALS in 1947 at the age of 59.
There is currently no cure for this disease. While there are many promising drug trials underway, more research is necessary to find a cure.
Thank you for helping us reach our fundraising goal! Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
WHY WE NEED YOUR HELP
Every 90minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments a cure. Will you join us?
Amyotrophiclateral sclerosis (ALS) is a progressive, fatal neuromuscular disease thatslowly robs the body of its ability to walk, speak, swallow and breathe. Thelife expectancy of a person with ALS averages 2 to 5 years from the time ofdiagnosis.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!