Help us raise money to find a cure for ALS!
|Event:||Long Island Walk|
|Date:||Saturday, September 26, 2020|
PLEASE COPY AND PASTE THIS LINK TO DONATE: http://bit.ly/AndreWilliams
Please visit http://bit.ly/ALShotline to help support the ALS Hotline to ensure proper and safe care for all ALS patients in a hospital or emergency room.
My name is Andre Williams, I am a United States Disabled Veteran living with ALS. To my dear friends and loves ones with family members that are suffering with the incurable disease called ALS (Lou Gehrig’s Disease). For those who have been dealing with this disease from the beginning until now I would like to tell you that this disease called ALS is attacking me and I’m attacking it.
In the year 2006, I was diagnosed with Motor Neuron Disease, ALS-Lou Gehrig’s Disease. It is assume that I have this disease, but I control this disease. At this time it is an incurable disease, but with the right patience, medical and family support is how I am surviving today. I can recall for the very first time when I was diagnosed with this disease, when it tore a hole in my heart. It was so devastating that I was ready to take my own life. Not knowing what to do and how to deal with this disease was a great impact to my normal and daily life style. For the first few days my mind was completely out of control. Sleepness nights was unbearable, but it wasn’t until one day that I woke up and realized that this wasn’t an illness by choice, but an illness that would constantly attack me while I battle through life. If I was to survive, I would have to become stronger, wiser and advocate for others and for myself to survive this disease.
Thanks to the ALS foundation and monthly support groups I was able to meet other patients living with ALS, nurses, coordinators and there support group to help guide and encourage me to move on, on a daily basis. I just recently saw a home made video from 1994, where it showed my legs constantly shaking having spasms without me even knowing that I was having them. It showed that, that was one of the beginning stages of ALS.
My dear friends, they say that ALS life expectancy is from 3 to 5 years from the time that most of us find out that we have any diagnoses of this disease. I’ve now realized that I have been living with ALS for over 20 years, and yet today without the use of my upper and lower extremities I still have yet to give up on the fight for a cure and better treatment for this disease.
I’ve yet to find another me that would be an advocate strong minded and willing to share their strength, the loving care and the power to encourage those with this illness to never give up. Could that be you? Stay positive, motivated and have faith. Life is not over until God says it is over. I live my life on a daily basis still planning trips, going places, taking cruises, flying to different states by calling ahead to other ALS Chapters from different states. With the support I am able to live my life just as normal as anyone else. Remember I have ALS, ALS doesn't have me.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease. I encourage you get your friends, family, neighbors and coworkers involved!
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease though support is bringing researchers closer to an answer. In the mean time it costs an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.
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